Friday, March 9, 2012

Too much

Blah. I have not had the energy to blog AT ALL!!! I haven't been any busier than usual, I just felt like I had nothing positive or fun to write about, so I have just been quiet.
Katie had her baclofen pump placed on the 1st of Feb. Immediately we noticed swelling, but not much else. No effects from the medicine what so ever. We were all pretty discouraged, thinking that we had put her through another surgery for NOTHING. Last week the Dr said that since the swelling had not gone down and was worsening, he needed to go back in to fix whatever was wrong.
It turns out the connector that holds the tubing in place to run the medication into her spine, had broken. So ALL of the baclofen had been pumping out right at the pump site...explains all of the swelling/fluid!!
It has been one week today since they fixed her pump, and we are FLOORED by the difference in her muscle tone! It is very obvious that the pump was broken from the very beginning. It is kind of exciting to see her body changing. I don't remember what she was like physically 2 almost 3 years ago. So this seems so drastic.
That poor girl has had a horrible 2.5 years. I am so happy that it appears she is done with operations and hopefully chronic pain! It brings tears to my eyes to look at her and imagine what she must feel inside, but yet she smiles and laughs more than anyone else. I wish it hadn't taken this long to get her relief, but it was out of our control until now!
Caleb got all A's and B's on his report card again! He is competing in his second karate tournament at the end of this month. He has been a great helper and wonderful to have around lately. I can't tell you how much he helps with things around the house, and mostly with Reese. He loves his sisters more than anything, and it shows!
Reese is hilarious. She makes me want to pull my hair out one minute, then the next I just want ti squeeze and kiss her face. I love all the new words she has, and how independent she THINKS she is!

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